Ethan will be four on November 7. It has been a long road since his diagnosis of Chronic Granulomatous Disease at the age of 3 1/2 months and a new diagnosis of Crohn's-colitis, a complication of CGD, in November 2005. He's had his share of hospitals, doctors, tests, needles, and medicine. While medicine and needles are a mainstay, we have seen a lot less of the others over the past nine months.
Ethan presented with this genetic primary immune disorder with a deep-seeded fungal infection in his lymph nodes February 2003. After exploratory surgery, 2 line placements, and 6 weeks in the hospital he was able to go home on IV antibiotics. Ethan has had about eleven hospitalizations for infectious processes over the past four years. Including one other surgery to remove infected lymph nodes, countless tests, and other line placements.
Today, Ethan is a happy and busy little boy. He loves going to church, playing outside with his little brother Jonah and anything to do with the Disney movie Cars. Although, he does not currently go to school he is very smart and enjoys playing educational games on his computer. He brings so much joy to our lives and we thank God for His mercy and grace. Throughout Ethan's illness we have seen God move mountains when it seemed like there was no hope.
Ethan is not completely out of the woods. CGD is a life-long battle. However, he is currently infection-free and his colitis is under control. We believe that it is through faithful prayer and the generous support of people like the Raylee/Riliegh Foundation that help families cope with the emotional and financial strains that accompany having a child with a life-threatening illness.
Thank You and May God Bless,
(John, Ethan and Jonah)